Aqeela

A STORY TO SHARE.....

Thursday, June 13, 2013

The Truth...

Almost 20 minutes in the echo test room while Dr Zul placing the ultrasound probe (something like scanner on Aqeela's body) and he keep on looking on something like x-tray image on the monitor screen. Applying soft gel on the probe he move up and down..left and right . Baby Aqeela doesn't like coz even bila ibu dia nak bukak baju for bath pon dia marah inikan pulak doktor yang letak something. She started to cry... Well dear,  papa can't do anything coz we need to do this and it will be just for couple of minutes k... Doktor stopped for a while lepas tengok Aqeela marah semacam.. and ask Ibu to breast feed her. Senyap jap lar... tapi dengar suara tu macam sedu-sedu sedih sangat jer.

We started back the procedure all over again and this time Doktor snap few pictures... I don't really know what it is.. tapi screen tu gambar jantung with blue and red color and also when he printed it was a black and white picture( after doing some reading baru tau rupanya its the oksigen supplied from the left and right compartment of the heart). Entahlar.... by looking at Dr Zul's face its not gonna be a good sign and i know something is not right.

Datuk Dr Zul took out a piece of paper and few pictures and started to draw something identical to the pictures which i just saw on the screen.

He explained..." This is a normal heart.... the blood comes from here goes here... and what is your baby is having now her blood coming from here and it go to a little bit to the upper side and this is ASD ( Atrial Septal Defect) and another one what we called the TOF (Tetratogy of Fallot) and her oxygen in the blood is less than normal . He explaining further however, I don't give so much attention anymore coz dah macam taknak dengar apa-apa dah and tak tau nak cakap apa... it just that hati kecil berkata-kata Ya Allah, ujian apakah ini ?"

Aqeela..... Papa tak caya lar baby papa ni tak sihat. Papa tengok you minum macam kakak-kakak you... you tido macam kak long u ...Ur body macam kak ngah nyer body...bila u nak milk you bunyi sikit-sikit jer macam kak long... bila you tido nak ada bau ibu macam kak ngah and both of them sihat walafiat... and why this thing could happened to you baby....

Trying to act normal but it just hopeless for a while.......

We walk out from the room with questions that just can't be put into words. I can see tear drops from diana's beautiful eyes but it doesn't mean anything any more except for.... Why Me?? Why Us???Why Baby Aqeela Adi Faizal???????????????? MasyaAllah... Maha Suci Allah... Istifar dan selawat hanya di bibir buat pegangan. Bagi insan yang baru menerima berita yang anaknya adalah pengidap penyakit Jantung Berlubang......its really something....Both of us know this is a new chapter in our life and Allah know the best.....  

From the room we went back to Dr Ling's office and he explaining to us what is the reasons of the Murmur sound that had been in Aqeela's body since her birth. She is having a congenital heart defect... and there are few circumstances and procedures need to be done for the best of her. What is good about Aqeela, her blood vessel in the heart is a bit wider and that prevented her from having a Blue Baby Syndrome. (Actually BBS ni baby akan jadi biru especially  bila minum milk, nangis etc) Alhamdulillah.... that answered why she just as normal and as fine as other baby.

Where do I start from here... I need a 2nd opinion I guess... since this is the beginning can we get a letter from you to refer us to other specialist..What Do you think Dr.? 
         That would be absolutely fine ... I recommended you to this 2 places... IJN or Glenagles..? 

Ya Allah ya tuhanku sesungguhnya hambamu ini kecil dan kerdil . Dengan kehendak dan ketentuan mu itu berikanlah kekuatan kepadaku untuk melalui fasa baru ini yang tidak terlintas dengan akal dan fikiran keranan sesungguhnya engkau Maha Pengasih dan Penyayang.

*Alhamdulillah manage to get a date to refer IJN this coming 24th June.... 










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