Hari Ini Dalam Sejarah

Syukur kepada Allah yang Maha Penyayang dan Maha Mengasihi...

Alhamdulillah.. we finally arrived at IJN after 1 hour and 15 mins drive.. as today is Monday and everybody is like rushing to the office at this hour. Weather still bad and traffic congested all the way from Shah Alam. Really difficult to put in words how I feel about it... berserah kepada Yang Maha Kuasa.

The last time I was here was during Diana's uncle bypass operation. Alhamdulillah he's fine now. We walk straight to the reception counter which at the left side as you enter the lobby. Eventually IJN already separated the adult and kid area.. we were ushered to the Paediatric Department which located exactly in front of the open space parking. Lucky me not so many people at this hour and registration really quick and fast. Your kid need to be photograph for the record and few documents need to be sign. Once completed they gave me a Green File and from there I need to complete few procedure before doctor's consultation. 

                                                                  X-Ray Room.

New patient will need to go for the X-Ray and for pregnant mother, you are not allowed in here! Aqeela so far ok lar... tak cry pun since it was really fast. Nak bukak baju dia lagi lama dari buat X-Ray.. hehehhe. I was being inform that the X-Ray film will be send straight to Doctor.. so no need to bring A3 size envelope everywhere just like those days. After X-Ray we went for another test ... ECG Test

Not so long of waiting once you place the Green File in the ECG room, person in charge will call your name. Well... this time Aqeela doesn't like it at all. Some kind of stickers were placed on her body and wires from the machine clipping the sticker. She cried and time ni memang start rasa sebak sangat seeing my baby like that. Aqeela strong Ok...papa and Ibu sayang Aqeela.

Once completed we move to Room 903 for weight scale and file submission. Alhamdulillah ada peningkatan berat badan Aqeela and the oksigen level in her body was 100%. 

From here, we have to wait to see Dr. Geetha.... lama gak lar . Lucky for us baby sleep dalam carrier so tak lar susah sangat. It almost 11 am and ramai patient kat IJN ni especially parents with kids. Now I realized that kat Malaysia ni memang banyak kes sakit jantung yang tidak mengira umur. Infact ada yang lebih teruk keadaannya... syukur Alhamdulillah........Ya Allah... berikanlah aku kesabaran dalam menempuh ujian yang engkau berikan ini. 

We finally being call up by nurse to see Dr. Geetha and there were some questions and answers between us  before she start the echo test .. just like in KPJ before. At this point of time, tak tau lah nak cakap apa dalam hati ni.. just berserah kepada Allah jer. Sebelum ni KPJ informed ada TOF and ASD,  hopefully its a good news. Lama jugak lar doc check and few time stopping coz Aqeela crying. Almost 20 minutes she sat back and start explaining.

Your daughter is having what we call VSD... Vetrical Septal Defect and also a bit of ASD. The vetricular septum is a bit overriding to the left and that might be the reason why KPJ diagnosed its a TOF. Well, I don't really agree its a TOF anyway as for my evaluation. As for now her body still accepting a sufficient amount of blood and oxygen in the heart but we can't wait too long. Blood overflow may cause damage to the heart and we don't want that to happen. The solution is to do the surgery not more than 3 months from now. 

Tears flow and our heart were touched again. Its a difficult moment for both of us again.

Ya Allah Ya Tuhan ku... Ujian yang Engkau berikan ini sesungguh amat berat bagi ku.. permudahkanlah segala urusan ku dan berikanlah aku ketabahan dan kesabaran dalam menempuh ujian mu ini. 

Super Hazzy:JDT

Cuaca oh cuaca....

Its look like being in the highland with the mist and fogs around... unfortunately it was humid, hot and hazzy... I wish to stay longer here just like before... good food and good hotel ... Errkkk with this kind of weather sorry babe. Quickly finishing my work.. get the tix change immediately, lucky me I got a seat ...poor me the flight delayed almost 3 hours.

Tak inform pun Diana I'm coming back... so macam wat suprised gitewww. Received call from her masa dalam taxi tapi buat-buat mcm busy or else kantoi lar balik awal. Sampai jer rumah , rang the bell and Diana welcoming her husband with the biggest smile.

Actually my mind wasn't in JB at all since I left the house at 6 am . Since it was my first ever fieldwork after Aqeela was born I left the house with a blundered heart. I really don't like it..and I must do something about it and please help me God. Ya Allah ya tuhanku permudahkan lah urusan ku ini.Well, definitely no other reason to be safely back at home just to be with my family especially Aqeela.

still dont know what to expect for this coming 24th...

26 Days

Salam....

Syukur pada Yang Maha Esa yang memberikan limpahan kenikmatan kekuatan diri untuk menempuh hari-hari yang mendatang.

Today Aqeela dah masuk 26 hari and we just got back from KPJ for check-up. Guess what... she is 900 gm    heavier than before. Alhamdulillah, despite of the muntah-muntah lepas minum milk she actually gain weight and that is a good sign of body and health development.

Cuak jugak sebelum masuk jumpa Dr Ling tadi... however lepas consultation, rasa syukur kepada Allah yang amat sangat sebabnya Aqeela had shown a positive feedback. Masih teringang-ngiang di telinga dengar explanation from dok. regarding Aqeela nyer health and untill now, hanya doa dan tawakal kepada Allah sebelum we go to see IJN Specialist next week.

At this point what I would like to share :

1. Bersyukur dengn apa yang telah Allah berikan... no matter what
2. Even Aqeela positive ada heart problems just give her the same treatment macam anak2 lain... ( rasanya mcm bagi extra jer...hehehehe)
3. Always support each other... hubby and wife.. but I must give credits to Diana sbb dia yang byk berkorban masa tidoq ... Aqeela malam jer dia restless skit . Papa take over bila Ibu dah tak larat.
4. Doa dan tawakal ... bacaan surah-surah Al-Quran selepas Magrib atau Isya dan Subuh. (selain dari usaha perubatan moden, hanya Allah yang maha berkuasa untuk menyembuhkannya..InsyaAllah).

Dengan Izin Allah.. hari ini Oksigen supplied is 100 % which means she is as good as normal baby. Alhamdulillah Ya Rabbi Ya Karim.

The Truth...

Almost 20 minutes in the echo test room while Dr Zul placing the ultrasound probe (something like scanner on Aqeela's body) and he keep on looking on something like x-tray image on the monitor screen. Applying soft gel on the probe he move up and down..left and right . Baby Aqeela doesn't like coz even bila ibu dia nak bukak baju for bath pon dia marah inikan pulak doktor yang letak something. She started to cry... Well dear,  papa can't do anything coz we need to do this and it will be just for couple of minutes k... Doktor stopped for a while lepas tengok Aqeela marah semacam.. and ask Ibu to breast feed her. Senyap jap lar... tapi dengar suara tu macam sedu-sedu sedih sangat jer.

We started back the procedure all over again and this time Doktor snap few pictures... I don't really know what it is.. tapi screen tu gambar jantung with blue and red color and also when he printed it was a black and white picture( after doing some reading baru tau rupanya its the oksigen supplied from the left and right compartment of the heart). Entahlar.... by looking at Dr Zul's face its not gonna be a good sign and i know something is not right.

Datuk Dr Zul took out a piece of paper and few pictures and started to draw something identical to the pictures which i just saw on the screen.

He explained..." This is a normal heart.... the blood comes from here goes here... and what is your baby is having now her blood coming from here and it go to a little bit to the upper side and this is ASD ( Atrial Septal Defect) and another one what we called the TOF (Tetratogy of Fallot) and her oxygen in the blood is less than normal . He explaining further however, I don't give so much attention anymore coz dah macam taknak dengar apa-apa dah and tak tau nak cakap apa... it just that hati kecil berkata-kata Ya Allah, ujian apakah ini ?"

Aqeela..... Papa tak caya lar baby papa ni tak sihat. Papa tengok you minum macam kakak-kakak you... you tido macam kak long u ...Ur body macam kak ngah nyer body...bila u nak milk you bunyi sikit-sikit jer macam kak long... bila you tido nak ada bau ibu macam kak ngah and both of them sihat walafiat... and why this thing could happened to you baby....

Trying to act normal but it just hopeless for a while.......

We walk out from the room with questions that just can't be put into words. I can see tear drops from diana's beautiful eyes but it doesn't mean anything any more except for.... Why Me?? Why Us???Why Baby Aqeela Adi Faizal???????????????? MasyaAllah... Maha Suci Allah... Istifar dan selawat hanya di bibir buat pegangan. Bagi insan yang baru menerima berita yang anaknya adalah pengidap penyakit Jantung Berlubang......its really something....Both of us know this is a new chapter in our life and Allah know the best.....  

From the room we went back to Dr Ling's office and he explaining to us what is the reasons of the Murmur sound that had been in Aqeela's body since her birth. She is having a congenital heart defect... and there are few circumstances and procedures need to be done for the best of her. What is good about Aqeela, her blood vessel in the heart is a bit wider and that prevented her from having a Blue Baby Syndrome. (Actually BBS ni baby akan jadi biru especially  bila minum milk, nangis etc) Alhamdulillah.... that answered why she just as normal and as fine as other baby.

Where do I start from here... I need a 2nd opinion I guess... since this is the beginning can we get a letter from you to refer us to other specialist..What Do you think Dr.? 
         That would be absolutely fine ... I recommended you to this 2 places... IJN or Glenagles..? 

Ya Allah ya tuhanku sesungguhnya hambamu ini kecil dan kerdil . Dengan kehendak dan ketentuan mu itu berikanlah kekuatan kepadaku untuk melalui fasa baru ini yang tidak terlintas dengan akal dan fikiran keranan sesungguhnya engkau Maha Pengasih dan Penyayang.

*Alhamdulillah manage to get a date to refer IJN this coming 24th June.... 

My Heart

The Day we both know she is special... 

Papa Love You.. Baby

Dengan Nama Allah Yang Maha Pemurah Lagi Maha Penyayang.......
The whole nite , Takleh nak tido sangat sebab memikirkan pasal Baby Aqeela. I do some reading on the MurMur Sound and what I've found was really unpredictable. It can be various reasons so sangat berdebar-debar bila nak walk -in into Dr.Ling's office.

Are you ok B ? Baby Aqeela Ok ker? What is the result ? What are we gonna face? Is it good and normal or is it bad and worst?

1001 satu soalan bermain di mindaku ini sampai takleh nak tido dibuatnyer. After solat subuh and preparing breakfast for Kakak and adik we went to KPJ with doa dan tawakal. Diana tak banyak cakap and she only holding Aqeela with love and affection. Anyway Aqeela pakai baju tulisan "I Love Mummy" jeles papa jap...

As we walk into Dr. Ling office and he approaching us with his great smile asking us how's the baby and bla..bla.. dia mintak letak Aqeela on the bed. Putting his stetoskop few places on Aqeela's body and he finally speak...

Yup... the sound is still there but i cannot confirm anything until we do the echo test... 

Macam nak pitam pon ada sebab at this time macam-macam lak yang come across my mind. Ya Allah ... ujian apakah ini? Naper kena buat echo test lak... naper tak macam kakak-kakak dia... Just follow the visit schedule. Diana dah tak tahan nak nangis and she cried even kita lom tahu what to expect . With that, Dr Ling had referred us to the Cardiac Specialist Datuk Dr Zul to carry the echo test.

Almost eleven o'clock baru dapat jumpa specialist since its an unscheduled  appointment. I had mixed feeling about this.. and same goes with Diana. Both of us praying the best for our beloved Aqeela...

Ya Allah ampunilah dosa hamba mu yang hina ini....

First Week Checkup

Alhamdulillah...Syukur kepada Pencipta Alam yang masih memberiku nyawa untuk terus menulis ....... Well, it has been a week after Aqeela was born . Muka dia dah kurang bengkak and mata pun dah kurang sepet...or else macam anak jepun. On 29 Mei, Me and my beloved diana going to KPJ for Aqeela's first checkup. Kind of excited sebab dah lama tak guna baby carrier yang telah diperturunkan since our first Princess Adriana.. she is 8 now. As usual KPJ Shah Alam memang tak pernah sunyi and sentiasa ramai. Eventually Diana also went for her check so we got 2 numbers in queue but alhamdulillah not so long of waiting Aqeela went for weighing dulu. She is 270 gram heavier from first day born. Our 1st checkup actually went so well until Dr.Ling discover something pada Baby Aqeela. Her heart berdegup dengan kadar yang agak laju... normal children around 110-160 per minit and there is a "Murmur" sound which he also tak boleh nak confirm until we go for the Ultrasound check or Echocardiography . Just nak bagi tau yang this is my first ever heard about this procedure sbb tak pernah terlintas pon such proses. As for now, Me and diana are praying the best for Aqeela since the procedure will only be done on the 4th June (Tuesday). As usual baby Aqeela was totally fine and she don't show any sign or symptoms of heart difficulty. Papa love you so much. "Ya Allah Ya Tuhan ku , peliharakanlah hamba mu ini dari segala malapetaka dan musibah sesungguhnya engkau maha mengetahui"

Welcoming My 3rd Princess Aqeela

On 22nd of Mei 2013 at 3.58 pm my new princess finally born to the world. After hard long 7 hours of pain in the labor room she is finally say Assalamualaikum papa. Really excited and really looking forward. As for now she will be known as Aqeela Adi Faizal. Baby weight 3.2 kg and 51 cm of length and for newborn she was a good and fine baby. Alhamdulillah.